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Wednesday, November 2, 2011
Monday, August 15, 2011
Fear and Loathing in Farm-vegas
I'm scared. So much so I've only gotten about four hours of sleep the last few nights. Why you ask?
I'm having tests ran this week to "rule out" multiple sclerosis. And herniated discs in my back, but if that comes back positive, I can deal with that. What's one more surgical scar and more physical therapy? LOL Surgery, schmurgery, I say these days.
Multiple Sclerosis, however, just seems much more scary. I mean, (and it may sound completely asinine, but hell, these are my fears I'm pouring out here...) they have benefit walks for MS. You know, kinda like they do for breast cancer and heart disease... and other scary diseases for which there is no cure at the moment. Fibromyalgia on the other hand, which has a lot of the same symptoms as MS, just none of the actual degeneration of one's nervous system, usually just gets swept under the proverbial rug...
How did this all come up?? Well, I was diagnosed with Fibromyalgia by my PCP and a rheumatologist in 2009 after I had my "little fender-bender..." I was having days where I just literally could not get out of bed. I remember the first episode I had was in May, about a month or so after I got out of the hospital. D and I had went to his grandma's house in Illinois. I was just soooooooo tired. Even a venti starbucks white mocha frap couldn't wake me up. I ended up sleeping most of the time we were there to visit. And I hurt, oh god did I hurt. It wasn't just my arm this time, it was my whole body. Then there were the times when I couldn't sleep, no matter how tired.... and no matter how much medicine I took to make me tired... I was. After about a month of all this happening off and on, I went to my doctor thinking he'd tell me this was just normal for someone who'd flipped a car end over end and side over side at 70 mph, and that it'd go away eventually. Well that's not what he told me, he said the dreaded F word... Fibro. A rheumatologist looked me over and concurred with my PCP's diagnosis.
So I've dealt with the pain (sometimes mild, sometimes searing, always present), the fatigue, the exhaustion, and the sometimes foggy brain for a couple of years now. I've had many battles with the Fibro Insomnia Monster, as I call "him" (and I seem to be losing a battle with him right now...) In the last several months, I have noticed more little things happening to me... I fumble my words when I speak a lot more than I used to. I drop things all of the time with my right hand... You know, the one that DIDN'T get mashed in the accident. I open more jars with my bad left hand and arm than I do my right now. I've also developed muscle spasms. They started out just being at night when I first laid down for bed, and mostly in my legs... kind of like a restless leg syndrome deal. Nowadays, they happen pretty much all day and to my whole body. They can be accompanied by pain, or they can be completely benign.
Then, I would say a month and a half ago, I had something really weird happen to me... I was lying in bed, trying desperately to sleep, when I had... I don't know if you'd call it a full body spasm or a small seizure, but yeah... there ya go. All of a sudden my body tensed up and shook for I'd say about three seconds.And in the past month I've had countless nights lying in bed where I feel like I'm being drawn and quartered... Like someone is literally trying to rip my legs off ,the pain is that bad.
I did a bad thing in that rather than consulting my doctor, I decided to consult with Dr. Google. I wanted to know what could be causing these stupid spasms, and the increasingly bad pain I've been experiencing. Which is where I learned that a lot of Fibro's symptoms are also MS's symptoms, and generally you don't hear about Fibro patients having constant muscle spasms or any of that jazz. So, now that I had thoroughly scared myself, I finally went to my doctor with my concerns. He really didn't think MS was on the table until I told him about my weakening right hand. That's when he decided to order the MRI to rule it out. I go for xrays tomorrow... well, I guess today... this morning now that it's after midnight. And the MRI is Friday evening. Fun times.
T minus 5 days until Abby's first birthday party! I'm glad I have something good and fun to look forward to this weekend that will take my mind off of waiting for test results.
Oh, by the way, she is walking now. EVERYWHERE.
I'm having tests ran this week to "rule out" multiple sclerosis. And herniated discs in my back, but if that comes back positive, I can deal with that. What's one more surgical scar and more physical therapy? LOL Surgery, schmurgery, I say these days.
Multiple Sclerosis, however, just seems much more scary. I mean, (and it may sound completely asinine, but hell, these are my fears I'm pouring out here...) they have benefit walks for MS. You know, kinda like they do for breast cancer and heart disease... and other scary diseases for which there is no cure at the moment. Fibromyalgia on the other hand, which has a lot of the same symptoms as MS, just none of the actual degeneration of one's nervous system, usually just gets swept under the proverbial rug...
How did this all come up?? Well, I was diagnosed with Fibromyalgia by my PCP and a rheumatologist in 2009 after I had my "little fender-bender..." I was having days where I just literally could not get out of bed. I remember the first episode I had was in May, about a month or so after I got out of the hospital. D and I had went to his grandma's house in Illinois. I was just soooooooo tired. Even a venti starbucks white mocha frap couldn't wake me up. I ended up sleeping most of the time we were there to visit. And I hurt, oh god did I hurt. It wasn't just my arm this time, it was my whole body. Then there were the times when I couldn't sleep, no matter how tired.... and no matter how much medicine I took to make me tired... I was. After about a month of all this happening off and on, I went to my doctor thinking he'd tell me this was just normal for someone who'd flipped a car end over end and side over side at 70 mph, and that it'd go away eventually. Well that's not what he told me, he said the dreaded F word... Fibro. A rheumatologist looked me over and concurred with my PCP's diagnosis.
So I've dealt with the pain (sometimes mild, sometimes searing, always present), the fatigue, the exhaustion, and the sometimes foggy brain for a couple of years now. I've had many battles with the Fibro Insomnia Monster, as I call "him" (and I seem to be losing a battle with him right now...) In the last several months, I have noticed more little things happening to me... I fumble my words when I speak a lot more than I used to. I drop things all of the time with my right hand... You know, the one that DIDN'T get mashed in the accident. I open more jars with my bad left hand and arm than I do my right now. I've also developed muscle spasms. They started out just being at night when I first laid down for bed, and mostly in my legs... kind of like a restless leg syndrome deal. Nowadays, they happen pretty much all day and to my whole body. They can be accompanied by pain, or they can be completely benign.
Then, I would say a month and a half ago, I had something really weird happen to me... I was lying in bed, trying desperately to sleep, when I had... I don't know if you'd call it a full body spasm or a small seizure, but yeah... there ya go. All of a sudden my body tensed up and shook for I'd say about three seconds.And in the past month I've had countless nights lying in bed where I feel like I'm being drawn and quartered... Like someone is literally trying to rip my legs off ,the pain is that bad.
I did a bad thing in that rather than consulting my doctor, I decided to consult with Dr. Google. I wanted to know what could be causing these stupid spasms, and the increasingly bad pain I've been experiencing. Which is where I learned that a lot of Fibro's symptoms are also MS's symptoms, and generally you don't hear about Fibro patients having constant muscle spasms or any of that jazz. So, now that I had thoroughly scared myself, I finally went to my doctor with my concerns. He really didn't think MS was on the table until I told him about my weakening right hand. That's when he decided to order the MRI to rule it out. I go for xrays tomorrow... well, I guess today... this morning now that it's after midnight. And the MRI is Friday evening. Fun times.
T minus 5 days until Abby's first birthday party! I'm glad I have something good and fun to look forward to this weekend that will take my mind off of waiting for test results.
Oh, by the way, she is walking now. EVERYWHERE.
Friday, July 22, 2011
Save a life! Become a bone marrow donor!
I just wanted to pass this along... a woman that frequents the message boards at The Bump has a little girl just a week older than Abby... and already needs a bone marrow transplant. She has a rare form of marrow failure called "Congenital (from birth) Amegakaryocytic (lack of megakaryocytes or large cell-making cells) Thrombocytopenia (without platelets)" (I copied that from her blog because I figured I'd screw it up trying to remember the whole name myself!) It is so rare that there are only about 100 known cases in the world. And the only cure and hope for this sweet girl is a complete bone marrow transplant. Her docs think they have found her a match, but others continue to wait for theirs. There is info on the donor process and links to the organization DKMS on her blog. Just click on the "pray for Kate" button on the left side of this page.
Be the match! And if you are pregnant, look into cord blood donation as well!
ps... her story's gone global... she's even on perez's blog and Celine Dion's website!
linked from fitperez.com
http://fitperez.com/2011-07-21-celine-dion-urges-fans-to-help-little-girl-with-bone-marrow-failure
Celine needs your help.
Lindsey Boggan struggled for years to become pregnant. And just ten months after giving birth to her little girl, Kate, the baby is now struggling for her life with a rare form of bone marrow failure.
Lindsey desperately wrote on her blog asking for help.
Struggling with fertility issues herself, singer Celine Dion knew she needed to do something when she heard the story of Lindsey and Kate.
She is urging her fans to register with DKMS in the hopes of becoming a hero and saving a 10-month-old who is struggling to survive.
DKMS is the world's largest bone marrow donor center that is urging everyone nationwide to sign up for a registration kit that will help them find a bone marrow match for Kate.
Click here to sign up and hopefully become a bone marrow donor for Kate or for the thousands of people who need your help.
[Image via WENN.]
Be the match! And if you are pregnant, look into cord blood donation as well!
ps... her story's gone global... she's even on perez's blog and Celine Dion's website!
linked from fitperez.com
http://fitperez.com/2011-07-21-celine-dion-urges-fans-to-help-little-girl-with-bone-marrow-failure
Celine Dion Urges Fans To Help Little Girl With Bone Marrow Failure
Filed Under: Sad Music Minute Celine DionCeline needs your help.
Lindsey Boggan struggled for years to become pregnant. And just ten months after giving birth to her little girl, Kate, the baby is now struggling for her life with a rare form of bone marrow failure.
Lindsey desperately wrote on her blog asking for help.
Struggling with fertility issues herself, singer Celine Dion knew she needed to do something when she heard the story of Lindsey and Kate.
She is urging her fans to register with DKMS in the hopes of becoming a hero and saving a 10-month-old who is struggling to survive.
DKMS is the world's largest bone marrow donor center that is urging everyone nationwide to sign up for a registration kit that will help them find a bone marrow match for Kate.
Click here to sign up and hopefully become a bone marrow donor for Kate or for the thousands of people who need your help.
[Image via WENN.]
It's a bittersweet symphony, this life...
My sweet cat of twelve years, TayTay passed on this morning. She lived with my parents, and unfortunately I haven't been able to see her since they moved to a different town earlier this year. That's probably a good thing though, since it seems she started deteriorating around that time. We didn't have a definitive diagnosis, but we think it was some type of cancer that ended up in her brain. The important thing is that she isn't suffering anymore, and she's in heaven playing with her sister Tweets, who passed a few months ago.
Well, I guess I'll update you on our life since once again, it's been forever! lol Abby continues to grow like a weed... She's now 28.4 lbs, which we know because they had to weigh her in the ER the other night. Poor Boo has had an awful viral infection (most likely roseola infantum) all week and still isn't feeling her best... evidenced by the fact she is currently napping and has been for FOUR hours!!!
She hasn't started walking quite yet, at least I'm not counting it as such. On occasion, she will take a few steps on her own but that's about it. It's just a confidence issue at this point...as soon as she feels she can do it on her own, she'll be off and running! She has stood up without pulling up one time, and that was out in the yard, the last time she played out there before getting sick (and before this awful heat wave!) I guess she just has too much to pull up on in the house, because I haven't seen her attempt it in here! lol
Her vocabulary is already growing too... The other day, she got all kinds of excited when I brought out her tray of spaghetti and she squealed, "sketti!" She can also say Abby, yeah, and "tee-tee", which for some odd reason, is her name for Elmo. I kinda wonder if she thinks Elmo is a puppy, because I've heard her call our friends' Great Dane the same thing on occasion... lmao We have been also working with her on sharing... we play this little game where whenever she has a sippy cup, we ask her if she'll share with us. She hands us the cup, we pretend to take a drink (since it's usually filled with formula... yuck!) hand it back to her and say thank you! She thinks this is hilarious...
Not much new going on with me and D... He got a 1990 Harley for Father's Day (and his b-day, anniversary, Christmas, Kwanzaa, Rosh Hashanah, and Canada Day... for the next five years... lol) and has been out riding a lot. I've been pretty unsuccessful with my job search so far, but thus is the job market these days. I'm not too sad about that though... I think it's gonna be really rough on me to put Abby in daycare. Plus I've been dealing with more flare ups of my fibromyalgia and they literally suck the life force out of me! I have found that taking a magnesium supplement has really helped though! I was having awful pain and nerve twitches at night when trying to fall asleep... since starting the magnesium, I haven't had much of a problem with that!
I leave with these pictures of cuteness...
Well, I guess I'll update you on our life since once again, it's been forever! lol Abby continues to grow like a weed... She's now 28.4 lbs, which we know because they had to weigh her in the ER the other night. Poor Boo has had an awful viral infection (most likely roseola infantum) all week and still isn't feeling her best... evidenced by the fact she is currently napping and has been for FOUR hours!!!
She hasn't started walking quite yet, at least I'm not counting it as such. On occasion, she will take a few steps on her own but that's about it. It's just a confidence issue at this point...as soon as she feels she can do it on her own, she'll be off and running! She has stood up without pulling up one time, and that was out in the yard, the last time she played out there before getting sick (and before this awful heat wave!) I guess she just has too much to pull up on in the house, because I haven't seen her attempt it in here! lol
Her vocabulary is already growing too... The other day, she got all kinds of excited when I brought out her tray of spaghetti and she squealed, "sketti!" She can also say Abby, yeah, and "tee-tee", which for some odd reason, is her name for Elmo. I kinda wonder if she thinks Elmo is a puppy, because I've heard her call our friends' Great Dane the same thing on occasion... lmao We have been also working with her on sharing... we play this little game where whenever she has a sippy cup, we ask her if she'll share with us. She hands us the cup, we pretend to take a drink (since it's usually filled with formula... yuck!) hand it back to her and say thank you! She thinks this is hilarious...
Not much new going on with me and D... He got a 1990 Harley for Father's Day (and his b-day, anniversary, Christmas, Kwanzaa, Rosh Hashanah, and Canada Day... for the next five years... lol) and has been out riding a lot. I've been pretty unsuccessful with my job search so far, but thus is the job market these days. I'm not too sad about that though... I think it's gonna be really rough on me to put Abby in daycare. Plus I've been dealing with more flare ups of my fibromyalgia and they literally suck the life force out of me! I have found that taking a magnesium supplement has really helped though! I was having awful pain and nerve twitches at night when trying to fall asleep... since starting the magnesium, I haven't had much of a problem with that!
I leave with these pictures of cuteness...
Monday, June 13, 2011
jeez I need to keep up with this thing a little better
It's been a busy couple of months! D is doing well at his job, though I often have to remind him that every company has corporate bs and you just have to not let it get you down. Emilee finished 1st grade with excellent grades and is looking forward to moving into her mom's new house next month and having her very own room! I joined weight watchers yet nor have I really been able to start walking. Two and a half months after falling down the stairs and my ankle is still killing me! Uggh! But I have lost a little weight just trying to eat less. I'm in the process of trying to find a job, which in this job market is seriously depressing. Especially if I want to find a job that actually makes it worth me putting Abby in daycare, rather than just barely paying for daycare. lol
Abby is just growing and growing, amazing us every day. She had her 9 month check up the other day. She was 29 1/2 inches, 25.4 lbs. she says momma (or mommom) and daddy very clearly and tries to say sissy (sounds like zheezhee) and bee (what we call a bottle, sounds like eee eee eee lol). She is now pulling up on all of the furniture and cruising around while hanging on to it. She is going to start walking any day now!
Abby is just growing and growing, amazing us every day. She had her 9 month check up the other day. She was 29 1/2 inches, 25.4 lbs. she says momma (or mommom) and daddy very clearly and tries to say sissy (sounds like zheezhee) and bee (what we call a bottle, sounds like eee eee eee lol). She is now pulling up on all of the furniture and cruising around while hanging on to it. She is going to start walking any day now!
Tuesday, April 12, 2011
So I haven't been on this thing for a while...
Well, life is just getting crazier by the minute, which I guess is to be expected when you have a baby who is increasingly mobile. Abby is rolling and scooting all over the place... just on the verge of actually crawling. She hasn't quite caught on to getting up on all fours yet, but she's pretty good at the ol' Army Obstacle Course crawl... She's holding her own Bees (what we call bottles) and starting to drink from a sippy cup. Daddy is proud because he taught her how to drink out of a 44 oz. styrofoam cup... Actually she just grabbed it out of his hands and started drinking away! So now we have to watch what we drink around her so she doesn't get ahold of something like Mountain Dew. Like I need her to be any more wired at night than she already is! She is also saying "daddy" very regularly and "mama" every great once in a while. Most people would say oh, she's just making noises, but I'm very sure she knows who "daddy" is and what she's saying when she says it. Mama? Still working on that... LOL
D started his new job as a maintenance tech/mechanical engineer/fabricator at a local factory and is loving it! I'm so happy for him that he has found his niche. Now I just wish I could find mine. Don't get me wrong, I do love staying at home with the wee one, but I also crave the adult interaction and mental stimulation that a job provides. There's only so much Sesame Street and singing my made up songs that I can take... LOL Although I do really, really enjoy naptime... ;)
We are enjoying the spring weather... Thank God it finally showed up! I plan on starting walking with Abby soon... well, as soon as my dang ankle heals... oh yeah, I fell down the stairs the other day and severely sprained it. Nice, huh? I'm also contemplating joining weight watchers... I'm running it by my doc on Friday. I want to start getting healthy so I can do more stuff with Abby when she gets old enough.
D started his new job as a maintenance tech/mechanical engineer/fabricator at a local factory and is loving it! I'm so happy for him that he has found his niche. Now I just wish I could find mine. Don't get me wrong, I do love staying at home with the wee one, but I also crave the adult interaction and mental stimulation that a job provides. There's only so much Sesame Street and singing my made up songs that I can take... LOL Although I do really, really enjoy naptime... ;)
Thursday, March 24, 2011
I must have picked up a four leaf clover somewhere...
YAYYYYYYYYYY!!!!!!!!!!
I'm so proud of my hubby and happy for him! He found a job!!! He'll be doing maintenance for a factory in town and it has good pay and benefits. We've been waiting for this to come along for a long time now and whoo hoo!!! Our prayers have finally been answered. He starts tomorrow!
We may have also found a house to rent. We live in a tiny apartment in a not so great area now and have been wanting to find a place that's a little bigger and a little more private (we can hear our neighbors' conversations and I'm sure they can hear ours! LOL). D's friend is getting married, and the happy couple is looking at moving into a bigger home and renting out his old house to us. It's in a good neighborhood, close to family and has a fenced in back yard.
Since he is now gainfully employed, and my part-time office gig will be winding down soon as the end of tax season is nearing, I am looking at what my next steps will be. I've been wanting to go to nursing school for a long time, and I'm thinking about going over to the local community college and checking out their program.They also have a radiology tech program I might be interested in too.
Abby's doing wonderfully... of course she went to day care today, so no telling what kind of mung she will be sick with over the weekend... LOL She's getting so darn big... she's going to be 7 months old this weekend and she's already wearing some 18 month clothes. !!!!! Here's a pic of an 18 month outfit on her that's none too big:
I'm so proud of my hubby and happy for him! He found a job!!! He'll be doing maintenance for a factory in town and it has good pay and benefits. We've been waiting for this to come along for a long time now and whoo hoo!!! Our prayers have finally been answered. He starts tomorrow!
We may have also found a house to rent. We live in a tiny apartment in a not so great area now and have been wanting to find a place that's a little bigger and a little more private (we can hear our neighbors' conversations and I'm sure they can hear ours! LOL). D's friend is getting married, and the happy couple is looking at moving into a bigger home and renting out his old house to us. It's in a good neighborhood, close to family and has a fenced in back yard.
Since he is now gainfully employed, and my part-time office gig will be winding down soon as the end of tax season is nearing, I am looking at what my next steps will be. I've been wanting to go to nursing school for a long time, and I'm thinking about going over to the local community college and checking out their program.They also have a radiology tech program I might be interested in too.
Abby's doing wonderfully... of course she went to day care today, so no telling what kind of mung she will be sick with over the weekend... LOL She's getting so darn big... she's going to be 7 months old this weekend and she's already wearing some 18 month clothes. !!!!! Here's a pic of an 18 month outfit on her that's none too big:
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